by Sharon Ball on 12 October, 2011
A campaign has been raging to raise £6 million by the end of October to fund an innovative gene therapy trial. The campaign, led by the Cystic Fibrosis Trust began in earnest in September 2011. Thousands of people living with the genetic condition, Cystic Fibrosis (CF), may be given the opportunity to enjoy a better quality of life if this new innovative gene therapy trial goes ahead and proves successful.
Doing his bit for the campaign is Bath Dad, Philip Kelley, who is organising a charity gig and auction on Friday 14 October to raise money for the appeal. The gig will be held at The Bear Pub in Bath, with Philip’s band ‘Agent Philby and the Funtans’, with donations being collected for the Cystic Fibrosis Trust.
Event organiser, Philip Kelley said:
“My eight year old daughter Mary has Cystic Fibrosis, when I heard that this trial had a funding shortfall I wanted to do all I could ensure the money was raised. The gig will be held to allow the local community to enjoy live music and feel good about helping to raise money for this worthwhile cause. I am especially grateful for the support from our local MP Don Foster.
MP for Bath, Don Foster, is seeking community support, he said:
“If this trial goes ahead and is successful, it can give the many CF families in Bath and across the UK, hope in achieving a better and longer life. I want to appeal to local businesses and the community to dig deep, not only to support this fundraiser but also to support the campaign. We cannot let this appeal fail.”
The UK CF Gene Therapy Consortium, funded by the Cystic Fibrosis Trust, has been working for ten years to find a way of inserting a healthy gene into a CF patient’s lungs to ensure that the damaging effects of the faulty CF gene are stopped in their tracks. They are now at an exciting stage and are ready to test the product on patients in a multi-dose clinical trial which aims to determine whether this new treatment works.
If the money is raised the trial will go ahead in the Spring 2012.
There are events across the country to raise money for the CF Trust’s Gene Therapy Appeal. Donations to the appeal can be made at: http://uk.virginmoneygiving.com/CysticFibrosisGeneTherapy-1
More information about Cystic Fibrosis is available from the Cystic Fibrosis Trust’s website: www.cftrust.org.uk